regopit wrote:
21 hours ago, regopit said:Dude you have my number. Call me if you need anything.
Thanks dude. I’ll remember that. Long week but my boy is one beautiful kid. He’s growing and he seems to be putting weight on which is really good! My stomach is a churning mess right now and we just got back to Ronald McDonald house so heading to bed. I’m getting pretty good at changing premie diapers in the isolette too! Not so sure it’s going to be good for me in the long run being Samantha’s was commenting on it!
Deep breathes buddy Deep breathes…well maybe not while changing the diapers
comp56 wrote:
4 minutes ago, comp56 said:Deep breathes buddy Deep breathes…well maybe not while changing the diapers
Especially right after their very first green one!
KnarlyCarl wrote:
Especially right after their very first green one!
I don’t know man, those first few diapers full of tar aren’t too much fun!
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kruton wrote:
Just now, kruton said:
I don’t know man, those first few diapers full of tar aren’t too much fun!
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I know, that’s what I’m saying, to NOT take deep breathes haha
KnarlyCarl wrote:
I know, that’s what I’m saying, to NOT take deep breathes haha
Ahhh, good call. Start potty training now Chris!
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Happy to hear things are improving bro me and the Family plus all the TIA uncles will continue to pray for you guys.
kruton wrote:
On 11/22/2016 at 9:19 PM, kruton said:
Ahhh, good call. Start potty training now Chris!
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Hey guys, pretty great week here at Maine Medical! Will got taken out of the isolette on Thanksgiving morning and has maintained his temps and continues to grow. Monday he has a blood test that’s pretty important for our second scare but I know God is watching over my son. I have been amazed at the center here, the staff and the volunteers at Ronald McDonald House. Samantha is amazing and has taken to motherhood like a bird in flight and is still biting my head off every time I bring up mini van to her 😀
I also learned my son is a Jedi master….These aren’t the droids your looking for…..
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Look at that head of hair!! My son didn’t have half that much lol crazy how it goes. Good to hear he is progressing along nicely!
KnarlyCarl wrote:
Look at that head of hair!! My son didn’t have half that much lol crazy how it goes. Good to hear he is progressing along nicely!
Hell I don’t have that much hair now!
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Hahaha yeah he has some serious hair and poops more than me! Of course I have been so stressed out that last week and a half but that’s okay. At this rate he will have more hair than me too!
Congrats Chris! Ditto on the hair. He already has more than I do ?
Wow bro very nice pic I see festool snobbie all over his face lol! Your son looks great bro?? we will be praying for the test on Monday come out great!
Bigmikez wrote:
28 minutes ago, Bigmikez said:Wow bro very nice pic I see festool snobbie all over his face lol! Your son looks great bro?? we will be praying for the test on Monday come out great!
Thank you Mike. The more the merrier that’s for sure, I truly appreciate that sir!
X2 on the prayers !!!
http://www.ffx.co.uk/tools/product/Festool-202307-4014549284063-Fan-Babygrow-Blue
Anyone looking to pick Chris up a present for the baby
So got some pretty cool news today. They are looking at transporting Will to Dover NH and their CCN because he is doing so well up here in Portland Maine. Our nurse said she believes Will will be home before Christmas. This transport might happen Wednesday, they wanted to do it this morning but we said no because we have a really important test for him to take scheduled Wednesday. So if they still have a bed at Wentworth Douglas Hospital we will take the test, hopefully get a good sample and a good result (insert many prayers here) and then get a ride in their special transportation ambulance in the afternoon and a hospital that is only 25 minutes from my door yard as opposed to an hour and a half. Plus the ability to go home and be with family.
ChrisK wrote:
2 minutes ago, ChrisK said:So got some pretty cool news today. They are looking at transporting Will to Dover NH and their CCN because he is doing so well up here in Portland Maine. Our nurse said she believes Will will be home before Christmas. This transport might happen Wednesday, they wanted to do it this morning but we said no because we have a really important test for him to take scheduled Wednesday. So if they still have a bed at Wentworth Douglas Hospital we will take the test, hopefully get a good sample and a good result (insert many prayers here) and then get a ride in their special transportation ambulance in the afternoon and a hospital that is only 25 minutes from my door yard as opposed to an hour and a half. Plus the ability to go home and be with family.
that is awesome Chris great news…
Thanks Comp
Awesome news bro!! Very happy to read this and like I said in many other post prayers dudes big mans always listening ? ??
Great news Chris! Him coming home is one hell of a great Christmas gift!
Bigmikez wrote:
3 hours ago, Bigmikez said:Awesome news bro!! Very happy to read this and like I said in many other post prayers dudes big mans always listening ? ??
Thanks Mike, I truly appreciate that it has been a pretty rough few weeks and though we are freaking out right now we are also both really hopeful he can come home and they moved his sweat test to today after I left to go home and get some of his nursery stuff taken care of! I’m heading back up there in a few and hopefully he had enough of a sample to test 🙂
BMack37 wrote:
1 hour ago, BMack37 said:Great news Chris! Him coming home is one hell of a great Christmas gift!
Thanks so much bro, could not be a better gift ever. 😀
Well rollercoaster again. Will didn’t generate the sweat needed for the test required because he’s so small but he’s up to 5lbs 15.8oz and tomorrow is a go. They have a specialized ambulance and NICU nurse along with a paramedic for the trip which is supposed to be during a snow so hands clasped. The trip is supposedly going to happen mid morning and my Wife is a wreck right now but Will’s blood work came back and it appears he may be in the clear for the second scare so…..the little guy ain’t gonna be happy till I have a coronary. I got the insurance statement from just the four hour visit at our local hospital prior to Maine medical….$5400!!!!! Just for a four hour stint on the floor!!!!! Hopefully insurance does us good but seriously, who cares? I HAVE A SON!!!!!
Been on the edge of my seat reading up since the last time I visited here, that’s incredible, and yes, the costs never seem proportionate!!! I didn’t have the doozy you are going through with my son, but it caused a blood clot and expensive stay in the hospital for my wife from her pregnancy 3 days in ICU, then a regular bed for a couple more days, close to $90,000… these are the times you realize how grateful to have good insurance!
So you weren’t able to get this sweat test, but were still able to get him moved closer to you guys?
KnarlyCarl wrote:
22 minutes ago, KnarlyCarl said:Been on the edge of my seat reading up since the last time I visited here, that’s incredible, and yes, the costs never seem proportionate!!! I didn’t have the doozy you are going through with my son, but it caused a blood clot and expensive stay in the hospital for my wife from her pregnancy 3 days in ICU, then a regular bed for a couple more days, close to $90,000… these are the times you realize how grateful to have good insurance!
So you weren’t able to get this sweat test, but were still able to get him moved closer to you guys?
Yeah bro, he didn’t provide enough sweat because he’s so small. But, our nurse is confident he cannot develop CF based on his latest blood work. From what I understand is he will carry the gene presumably like me and not develop the illness 🙂 Tomorrow I think we gat to talk with the geneticist! Then off to a level 2 NICU two towns from our new home and God willing a perfect Christmas with our son!
KnarlyCarl wrote:
26 minutes ago, KnarlyCarl said:Been on the edge of my seat reading up since the last time I visited here, that’s incredible, and yes, the costs never seem proportionate!!! I didn’t have the doozy you are going through with my son, but it caused a blood clot and expensive stay in the hospital for my wife from her pregnancy 3 days in ICU, then a regular bed for a couple more days, close to $90,000… these are the times you realize how grateful to have good insurance!
So you weren’t able to get this sweat test, but were still able to get him moved closer to you guys?
Here he is right now at 1040 on my arm fast asleep!
My boy (3.5yrs) was just in my arms, screaming his head off because he didn’t want to go to sleep… LOL fun times man, enjoy every second you can
Roger that bro. My Dad told me….”wait till he’s 16…” I said he can do anything he wants. He’s earned it 😉
Yeah, that MIGHT change 🙂
KnarlyCarl wrote:
1 hour ago, KnarlyCarl said:My boy (3.5yrs) was just in my arms, screaming his head off because he didn’t want to go to sleep… LOL fun times man, enjoy every second you can
I don’t have kids but I have a Nephew and damned if it doesn’t fly. His first couple of years went slow but I swear he went from 3 to 7 overnight. I’ll tell you, no matter how bad your day is or how depressed you might be; when you see him with a huge smile after not seeing you all day, running up and jumping in your arms, you will feel like Superman.
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We got transported down to a Level 2 NICU yesterday and the transport went great even in the snow. My son got his food tube removed this morning!
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That’s awesome news. Here’s hoping that the little bugger can be home for Christmas!
Man look at that BIg BOY!! He looks great!!!??? glad the transport went good!
Awesome. Before you know it he will be sneaking out at night to hang out with his friends while your passed out in the recliner
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Bigmikez wrote:
6 hours ago, Bigmikez said:Man look at that BIg BOY!! He looks great!!!??? glad the transport went good!
Thanks a lot Mike! Very stressful day but since he got here they are saying we might take our son home this weekend!!!!!!
Glad he’s doing better Chris, our thoughts and prayers are with you brother
MikeyB wrote:
3 minutes ago, MikeyB said:Glad he’s doing better Chris, our thoughts and prayers are with you brother
Thanks Mikey, I appreciate that much sir!
ChrisK wrote:
30 minutes ago, ChrisK said:Thanks a lot Mike! Very stressful day but since he got here they are saying we might take our son home this weekend!!!!!!
???? awesome news!
Glad to hear the good news pal! He seems to be looking for his impact driver maybe, lol!
wildroamer wrote:
14 hours ago, wildroamer said:Glad to hear the good news pal! He seems to be looking for his impact driver maybe, lol!
Newborns look for one and one thing only.
Actually, come to think of it, that probably won’t change as he gets older, though for different reasons…
khariV wrote:
11 minutes ago, khariV said:Newborns look for one and one thing only.
Actually, come to think of it, that probably won’t change as he gets older, though for different reasons…
Took me a minute….. Lol!!!
Well boys. My son, William came home today. Thank you for your prayers. Thank God.
ChrisK wrote:
On 12/8/2016 at 0:59 PM, ChrisK said:[External image (uploads.tapatalk-cdn.com), not copied]
We got transported down to a Level 2 NICU yesterday and the transport went great even in the snow. My son got his food tube removed this morning!
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Great news, great progress……
i have been away for a week, and just catching up.
continuing the prayers…..prepare for a blessed and Merry Christmas…. you deserve it !!!!
(handsome young man right there !!!!)
Foneguy wrote:
1 hour ago, Foneguy said:Great news, great progress……
i have been away for a week, and just catching up.
continuing the prayers…..prepare for a blessed and Merry Christmas…. you deserve it !!!!
(handsome young man right there !!!!)
Thanks Buddy!
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Here he’s is packed up and ready to rock and roll!
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ChrisK wrote:
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Here he’s is packed up and ready to rock and roll!
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Good lookin cowboy!
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Police escort home! Awesome news.
Very good Chris! Glad to hear all is well, ow here is the true parenting test lol
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Great news!!!
Super news Pops!….

